AJOB Empirical Bioethics | The Philosophy Paperboy

Medical Sanctions and the Response of Pharmaceutical Companies to Russia’s Invasion of Ukraine: A Thematic Analysis

Published on 18 Oct 2025

by Christopher A. Bobier Krisha Darji Daniel J. Hurst a Foundational Sciences, Central Michigan University College of Medicine, Mt. Pleasant, MI, USAb Rowan-Virtua School of Osteopathic Medicine, Stratford, NJ, USAc Department of Medical Education and Scholarship, Rowan-Virtua School of Osteopathic Medicine, Stratford, NJ, USA

Informed Consent Documents from Psychedelic Clinical Trials: A Descriptive Ethical Analysis

Published on 16 Jul 2025

by Katherine Cheung Caleigh Propes Marianna Graziosi Kyle Patch David B. Yaden a Berman Institute of Bioethics & Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USAb Department of Clinical Psychology, Hofstra University, Hempstead, New York, USAc Department of Psychiatry and Behavioral Sciences, Center for Psychedelic and Consciousness Research, Johns Hopkins University School of Medicine, Baltimore, Maryland, USAd Carey Law School, University of Pennsylvania, Philadelphia, Pennsylvania, USA

Patients’ Views on Paying to Participate in Clinical Trials

Published on 3 Jul 2025

by Nyiramugisha Niyibizi Tekiah McClary Margie Dixon April Liao Candace D. Speight Ayannah Lang Neal W. Dickert Rebecca D. Pentz a Georgia Clinical and Translational Science Alliance at Emory University School of Medicine, Atlanta, GA, USAb Department of Hematology/Oncology, Winship Cancer Institute of Emory School of Medicine, Atlanta, GA, USAc Division of Cardiology, Department of Medicine, Emory University School of Medicine, Atlanta, GA, USA

Pediatric Intensivists’ Perspectives on Nudging: A Multi-Institution Assessment of Ethical Permissibility

Published on 1 Jul 2025

by Aliza M. Olive Asdis Finnsdottir Wagner Ashely K. Sherman Jessica S. Wallisch Laura Miller-Smith a Division of Pediatric Critical Care and Case Western Reserve Lerner College of Medicine, The Cleveland Clinic, Cleveland, Ohio, USAb Division of Pediatric Critical Care, Children’s Mercy Hospital and University of Missouri-Kansas City, Kansas City, Missouri, USAc Department of Statistics, Children’s Mercy Hospital, Kansas City, Missouri, USAd Division of Pediatric Intensive Care, Doernbecher Children’s Hospital, Oregon Health Sciences University, Portland, Oregon, USA

Development and Validation of a Stakeholder-Driven, Self-Contained Electronic Informed Consent Platform for Trio-Based Genomic Research Studies

Published on 23 Jun 2025

by Bethany Y. Norton James Liu Sara A. Lewis Helen Magee Tyler N. Kruer Rachael Dinh Somayeh Bakhtiari Sandra H. Nordlie Sheetal Shetty Jennifer Heim Yumi Nishiyama Jorge Arango Darcy Johnson Lee Seabrooke Mitchell Shub Robert Rosenberg Michele Shusterman Stephen Wisniewski Blair Cooper Erin Rothwell Michael C. Fahey M. Wade Shrader Nancy Lennon Joyce Oleszek Wendy Pierce Hannah Fleming Mohan Belthur Jennifer Tinto Garey Noritz Laurie Glader Kelsey Steffen William Walker Deborah Grenard Bhooma Aravamuthan Kristie Bjornson Malin Joseph Paul Gross Michael C. Kruer a Barrow Neurological Institute, Phoenix Children’s, Phoenix, Arizona, USAb Departments of Child Health, Cellular & Molecular Medicine, Neurology and Program in Genetics, University of Arizona College of Medicine – Phoenix, Phoenix, Arizona, USAc Programs in Behavioral Health, Biomedical Informatics, Molecular & Cellular Biology, and Neuroscience, Arizona State University, Tempe, Arizona, USAd Cerebral Palsy Research Network, Greenville, South Carolina, USAe Department of Epidemiology, University of Pittsburgh, Pittsburgh, Pennsylvania, USAf Department of Obstetrics & Gynecology, University of Utah, Salt Lake City, Utah, USAg Department of Paediatrics, Monash University, Melbourne, Victoria, Australiah Department of Orthopedics, AI DuPont Children’s Hospital, Wilmington, Delaware, USAi Department of Physical Medicine & Rehabilitation, Colorado Children’s Hospital, Aurora, Colorado, USAj Division of Complex Care, Department of Pediatrics, Nationwide Children’s, Columbus, Ohio, USAk Department of Neurology, Washington University, St. Louis, Missouri, USAl Department of Pediatrics, Division of Developmental Medicine, Seattle Children’s, Seattle, Washington, USA

Should Physicians Take the Rap? Normative Analysis of Clinician Perspectives on Responsible Use of ‘Black Box’ AI Tools

Published on 12 May 2025

by Ben H. Lang Kristin Kostick-Quenet Jared N. Smith Meghan Hurley Rita Dexter Jennifer Blumenthal-Barby a Department of Philosophy, Oxford University, Oxford, UKb Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA

Survey of OB/GYN Residents Knowledge and Practice of Trauma Informed Care

Published on 30 Apr 2025

by Lauren Stokes Adriane Burgess Paul Burcher a Bronson Obstetrics & Gynecology Specialists, Kalamazoo, Michigan, USAb Maryland Patient Safety Center, Elkridge, Maryland, USAc York Hospital WellSpan Health OB/GYN Residency, York, Pennsylvania, USA

The Representative Studies Rubric: A Tool for Diversity in Clinical Trials

Published on 28 Apr 2025

by Brian Minalga Rona Siskind Russell Campbell Tyler Adamson Mary Allegra Cermak Annet Davis Eddie B. Givens Molly Dyer Katie McCarthy Nicole A. Montañez Rhonda White a The Legacy Project, Office of HIV/AIDS Network Coordination, Fred Hutchinson Cancer Center, Seattle, Washington, USAb Axle Informatics, Bethesda, Maryland, USAc Advancing Clinical Therapeutics Globally, Bethesda, Maryland, USAd School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, USAe FHI 360, Durham, North Carolina, USA

A Survey of Attitudes Toward Social Justice Obligations in the Field of Bioethics

Published on 17 Apr 2025

by Danielle M. Pacia Sana S. Baban Faith E. Fletcher Zamina Mithani Aziz Jane F. Cooper J. Wesley Boyd Ryan J. Dougherty a Hastings Center, Garrison, NY, USAb Center for Medical Ethics and Health Policy, Houston, TX, USAc Lenox Hill Northwell Health, NYC, USAd University of Toronto, Toronto, Canadae Harvard Medical School Center for Bioethics, Boston, MA, USAf Kaiser Permanente, Southern California Bioethics Program, Oakland, CA, USA

‘Why Do You Ask?’ Revisiting the Purpose of Eliciting the Public’s Moral Judgments About Emerging Technologies

Published on 24 Mar 2025

by Jared N. Smith Anne Barnhill Julian Savulescu S. Matthew Liao Matthew S. McCoy Jennifer Blumenthal-Barby a Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USAb Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland, USAc Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapored Uehiro Oxford Institute, University of Oxford, Oxford, UKe Center for Bioethics, School of Global Public Health, New York University, New York, New York, USAf Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA

‘An Unimaginable Challenge’: A Cross-Cultural Qualitative Study of Ethics and Decision-Making Around Tracheostomy Ventilation in Patients with Amyotrophic Lateral Sclerosis

Published on 19 Mar 2025

by Reina Ozeki-Hayashi Dominic J. C. Wilkinson a Department of Biomedical Ethics and Public Policy, Faculty of Medicine, Osaka University, Osaka, Japanb Department of Biomedical Ethics, University of Tokyo, Tokyo, Japanc Institute for the History and Ethics of Medicine, Interdisciplinary Center for Health Sciences, Martin-Luther-University Halle-Wittenberg, Halle (Saale) Germanyd Uehiro Oxford Institute, University of Oxford, Oxford, UKe John Radcliffe Hospital, Oxford, UKf Murdoch Children’s Research Institute, Melbourne, Australiag Centre for Biomedical Ethics, National University of Singapore Yong Loo Lin School of Medicine, Singapore, Singapore

Is It a Bribe? Research Personnels’ Perceptions of the Ethical Aspects of Financial Compensation to Healthy Volunteers in Prevention Trials in Tanzania

Published on 19 Mar 2025

by Raymond Athanas Gasto Frumence Rebecca J. DeBoer Connie M. Ulrich a Department of Bioethics and Health Professionalism, School of Public Health, Muhimbili University of health and Allied Sciences, Dar es Salaam, Tanzaniab Department of Development Studies, School of Public Health, Muhimbili University of Health and Allied Sciences, Dar Es Salaam, Tanzaniac Division of Hematology/Oncology, University of California San Francisco, San Francisco, California, USAd Biobehavioral Department, School of Nursing, University of Pennsylvania School of Nursing, Pennsylvania, Philadelphia, USAe NewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Pennsylvania, Philadelphia, USAf Leonard Davis Institute of Health Economics, University of Pennsylvania, Pennsylvania, Philadelphia, USAg Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Pennsylvania, Philadelphia, USA

Family Presence in Pediatric Cardiac Procedural Settings: A Qualitative Study of Clinicians, A Key Stakeholder Group

Published on 14 Mar 2025

by Zoel A. Quiñónez Kimberly A. Pyke-Grimm Shreya K. Kamra Kate E. Holmes Danton Char a Department of Anesthesiology, Perioperative and Pain Medicine, Stanford University School of Medicine, Stanford, USAb Department of Pediatrics, Hematology and Oncology, Stanford University School of Medicine, Stanford, USAc Department of Nursing Research and Evidence-Based Practice, Stanford, USAd Neuroscience Department, Pomona College, Claremont, USAe Stanford Medicine Children’s Health, Betty Irene Moore Children’s Heart Center, Stanford, USA

The Emotional Impact of Clinical Ethics Work on Clinical Ethicists: A Qualitative Study

Published on 12 Mar 2025

by Anna D. Goff Marsha M. Michie Marcie A. Lambrix Monica L. Gerrek a Division of Medical Ethics, Weill Cornell Medicine, New York, New York, USAb Department of Bioethics, Case Western Reserve University, Cleveland, Ohio, USAc Center for Biomedical Ethics, The MetroHealth System, Cleveland, Ohio, USA

Whether to Offer Interventions at the End of Life: What Physicians Consider and How Clinical Ethicists Can Help

Published on 4 Feb 2025

by Joelle Robertson-Preidler Mikaela Kim Sophia Fantus Janet Malek a McGovern Center for Humanities and Ethics, McGovern Medical School, Houston, Texas, USAb Institute for Bioethics & Health Humanities, University of Texas Medical Branch, Galveston, Texas, USAc School of Social Work, The University of Texas at Arlington, Arlington, Texas, USAd Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA

Enhancing Animals is “Still Genetics”: Perspectives of Genome Scientists and Policymakers on Animal and Human Enhancement

Published on 18 Dec 2024

by Rebecca L. Walker Zachary Ferguson Logan Mitchell Margaret Waltz a Department of Philosophy, Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USAb Department of Philosophy, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USAc Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA

Associations Between the Legalization and Implementation of Medical Aid in Dying and Suicide Rates in the United States

Published on 9 Dec 2024

by Olivia P. Sutton Brent M. Kious a Evans School of Public Policy & Governance, University of Washington, Seattle, Washington, USAb Department of Psychiatry, Huntsman Mental Health Institute, University of Utah, Salt Lake City, Utah, USA

Ethics Consultation in U.S. Pediatric Hospitals: Adherence to National Practice Standards

Published on 5 Dec 2024

by Helena Arango Colette Gramszlo Jaideep Grewal Arzu Cetin Meaghann Weaver Jennifer K. Walter a Fundación Cardioinfantil- Instituto de Cardiología, Bogotá, Colombiab Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania, USAc Department of Clinical Psychiatry, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USAd Clinical Futures, Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania, USAe Pediatric Palliative Care, University of Nebraska Medical Center, Omaha, Nebraska, USAf National Center for Ethics in Healthcare, Washington, District of Columbia, USAg Department of Medical Ethics and Department of Pediatrics, The Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania, USAh Department of Medical Ethics and Health Policy, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA

Monitored and Cared for at Home? Privacy Concerns When Using Smart Home Health Technologies to Care for Older Persons

Published on 18 Oct 2024

by Yi Jiao (Angelina) Tian Vanessa Duong Eike Buhr Nadine Andrea Felber Delphine Roulet Schwab Tenzin Wangmo a Institute for Biomedical Ethics, University of Basel, Bernoullistrasse, Basel, Switzerlandb Ethik in der Medizin an der Carl‑von‑Ossietzky Universität Oldenburg, Ammerländer Heerstr., Oldenburg, Germanyc La Source, School of nursing sciences, HES‑SO University of Applied Sciences and Arts of Western Switzerland, Lausanne, Switzerland

Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking

Published on 9 Sep 2024

by R. Jean Cadigan Roselle Ponsaran Carla Rich Josie Timmons Kyle B. Brothers Aaron J. Goldenberg a Department of Social Medicine, University of North Carolina Chapel Hill School of Medicine, Chapel Hill, North Carolina, USAb Department of Bioethics, Case Western Reserve University School of Medicine, Cleveland, Ohio, USAc Norton Children’s Research Institute Affiliated with the University of Louisville School of Medicine, Louisville, Kentucky, USA

Talking About Suffering in the Intensive Care Unit

Published on 9 Sep 2024

by Brent M. Kious Judith B. Vick Peter A. Ubel Olivia Sutton Jennifer Blumenthal-Barby Christopher E. Cox Deepshikha Ashana a Department of Psychiatry, University of Utah, Salt Lake City, Utah, USAb Department of Philosophy, University of Utah, Salt Lake City, Utah, USAc Center for Health Ethics, Arts, and Humanities, University of Utah, Salt Lake City, Utah, USAd Department of Medicine, Duke University School of Medicine, Durham, North Carolina, USAe Fuqua School of Business, Duke University, Durham, North Carolina, USAf Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA

Deep Brain Stimulation for Childhood Treatment-Resistant Obsessive-Compulsive Disorder: Mental Health Clinician Views on Candidacy Factors

Published on 9 Sep 2024

by Ilona Cenolli Tiffany A. Campbell Natalie Dorfman Meghan Hurley Jared N. Smith Kristin Kostick-Quenet Eric A. Storch Jennifer Blumenthal-Barby Gabriel Lázaro-Muñoz a Harvard Center for Bioethics, Harvard Medical School, Boston, Massachusetts, USAb Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USAc Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, Houston, Texas, USAd Department of Psychiatry, Massachusetts General Hospital (MGH), Boston, Massachusetts, USA

Clinical Ethics Fellowship Programs in the United States and Canada Program Directors Opinions About Accreditation and Funding

Published on 27 Aug 2024

by Ellen Fox Jason Adam Wasserman a Fox Ethics Consulting LLC Arlington Virginia USAb Oakland University William Beaumont School of Medicine Rochester Hills Michigan USA

Pediatric Assent in Clinical Practice A Critical Scoping Review

Published on 21 Aug 2024

by Jason Adam Wasserman Amelia N Najor Natalie Liogas Stephanie M Swanberg Abram Brummett Naomi T Laventhal Mark Christopher Navin a Department of Foundational Medical Studies Oakland University William Beaumont School of Medicine Rochester Michigan USAb Department of Pediatrics Oakland University William Beaumont School of Medicine Royal Oak Michigan USAc Clinical Ethics Corewell Health William Beaumont University Hospital Royal Oak Michigan USAd Oakland University William Beaumont School of Medicine Rochester Michigan USAe Michigan School of Psychology Farmington Hills Michigan USAf Department of Pediatrics University of Michigan Ann Arbor Michigan USAg Center for Bioethics and Social Sciences in Medicine University of Michigan Ann Arbor Michigan USAh Department of Philosophy Oakland University Rochester Michigan USA

Ethical Issues in Implementation Science A Qualitative Interview Study of Participating Clinicians

Published on 13 Aug 2024

by Justin T Clapp Naomi Zucker Olivia K Hernandez Ellen J Bass Meghan B Lane Fall a University of Pennsylvania Philadelphia Pennsylvania USAb The Ohio State University Columbus Ohio USAc Drexel University Philadelphia Pennsylvania USA

Down Syndrome is Not a Curse parent Perspectives on the Medicalization of Down Syndrome

Published on 7 Aug 2024

by Kirsten A Riggan Marsha Michie Megan Allyse a Biomedical Ethics Research Program Mayo Clinic Rochester Minnesota USAb Department of Bioethics Case Western Reserve University Cleveland Ohio USAc Department of Obstetrics and Gynecology Mayo Clinic Rochester Minnesota USAd Biomedical Ethics Research Program Mayo Clinic Jacksonville Florida USA

Correction

Published on 24 Jul 2024

To Counsel or Not to Counsel Physician Attitudes and Experiences with Do It Yourself DIY Fecal Microbiota Transplant FMT

Published on 27 Jun 2024

by Susannah F Colt Rebekah J Choi Anna Wexler Department of Medical Ethics and Health Policy University of Pennsylvania Philadelphia PA USA

Ethical Responsibility Very Often Gets Drowned Out A Qualitative Interview Study of Genome Scientists and ELSI Scholars Perspectives on the Role and Relevance of ELSI Expertise

Published on 25 Jun 2024

by Daphne O Martschenko Anna Grannuci Mildred K Cho a Stanford Center for Biomedical Ethics and Department of Pediatrics Stanford University Stanford CA USAb Stanford Center for Biomedical Ethics and Department of Medicine Stanford University Stanford CA USA

Understanding the Gap A Cross Sectional Survey of ELSI Scholars Dissemination Practices and Translation Goals

Published on 28 May 2024

by Deanne Dunbar Dolan Rachel H Lee Mildred K Cho Sandra Soo Jin Lee a Center for ELSI Resources and Analysis CERA Stanford University School of Medicine Stanford California USAb Stanford Center for Biomedical Ethics Stanford University School of Medicine Stanford California USAc Division of Ethics Department of Medical Humanities amp Ethics Columbia University New York New York USA

Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine

Published on 22 May 2024

by Deanne Dunbar DolanMildred K ChoSandra Soo Jin Leea Center for ELSI Resources and Analysis CERA Stanford University School of Medicine Stanford California USAb Stanford Center for Biomedical Ethics Stanford University School of Medicine Stanford California USAc Division of Ethics Department of Medical Humanities amp Ethics Columbia University New York New York USA

Advance Medical Decision Making Differs Across First and Third Person Perspectives

Published on 30 Apr 2024

by James ToomeyJonathan LewisIvar R HannikainenBrian D Earpa Elisabeth Haub School of Law Pace University White Plains NY USAb University of Manchester Manchester UKc University of Granada Granada Spaind Uehiro Center for Practical Ethics University of Oxford Oxford UK

Procedural Dimensions of Religious Exemptions to Covid 19 Vaccine Mandates Promoting Clarity Fairness and Transparency in Applications

Published on 26 Apr 2024

by Hajung LeeUniversity of Puget Sound Tacoma Washington USA

Views of Genetic Testing for Autism Among Autism Self Advocates A Qualitative Study

Published on 21 Apr 2024

by Robert KlitzmanEkaterina BezborodkoWendy K ChungPaul S Appelbauma Department of Psychiatry Columbia University New York NY USAb Department of Law Ethics and Psychiatry Columbia University New York NY USAc Department of Pediatrics Boston Children s Hospital Harvard Medical School Boston MA USAd Department of Law Ethics and Psychiatry NYP Columbia University Irving Medical New York Presbyterian Hospital New York NY USA

The Gap in Attitudes Toward Withholding and Withdrawing Life Sustaining Treatment Between Japanese Physicians and Citizens

Published on 8 Apr 2024

by Yoshiyuki TakimotoTadanori Nabeshimaa Department of Biomedical Ethics The University of Tokyo Bunkyo ku Tokyo Japanb Department of Emergency and Critical Care Medicine Tokyo Bay Urayasu Ichikawa Medical Center Urayasu Japan

Moral Engagement and Disengagement in Health Care AI Development

Published on 8 Apr 2024

by Ariadne A NicholMeghan HalleyCarole FedericoMildred K ChoPamela L Sankara Center for Biomedical Ethics Stanford University School of Medicine Stanford California USAb Department of Medical Ethics amp Health Policy University of Pennsylvania Philadelphia Pennsylvania USA

Public Perspectives on Investigative Genetic Genealogy Findings from a National Focus Group Study

Published on 8 Apr 2024

by Jacklyn DahlquistJill O RobinsonAmira DaoudWhitney Bash BrooksAmy L McGuireChristi J GuerriniStephanie M Fullertona Department of Bioethics and Humanities University of Washington School of Medicine Seattle Washington USAb Baylor College of Medicine Center for Medical Ethics and Health Policy Houston Texas USA

Patient Perceptions on the Advancement of Noninvasive Prenatal Testing for Sickle Cell Disease among Black Women in the United States

Published on 13 Feb 2024

by Shameka P ThomasFaith E FletcherRachele WillardTiara Monet RansonVence L Bonhama School of Public Health Harvard University Boston Massachusetts USAb National Institutes of Health National Genome Research Institute Bethesda Maryland USAc Center for Medical Ethics and Health Policy Baylor College of Medicine Houston Texas USAd School of Public Health University of Washington Washington Seattle USA

Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa

Published on 18 Jan 2024

by Abimbola M OladayoSydney ProchaskaTamara BuschWasiu L AdeyemoLord J J GowansMekonen EsheteWaheed AwotoyeVeronica SuleAzeez AladeAdebowale A AdeyemoPeter A MosseyAnya PrinceJeffrey C MurrayAzeez Butalia Department Oral Pathology Radiology and Medicine College of Dentistry University of Iowa Iowa City Iowa USAb Iowa Institute of Oral Health Research University of Iowa Iowa City Iowa USAc Department of Global Health College of Public Health University of Iowa Iowa City Iowa USAd Department of Oral and Maxillofacial Surgery University of Lagos Lagos Nigeriae Department of Biochemistry and Biotechnology Kwame Nkrumah University of Science and Technology Kumasi Ghanaf Department of Surgery School of Medicine Addis Ababa University Addis Ababa Ethiopiag Department of Operative Dentistry College of Dentistry University of Iowa Iowa City Iowa USAh National Human Genomic Research Institute Bethesda MD USAi Department of Orthodontics University of Dundee Dundee UKj College of Law University of Iowa Iowa City Iowa USAk Department of Pediatrics University of Iowa Iowa City Iowa USA

A Vision for Empirical ELSI along the R amp D Pipeline

Published on 12 Jan 2024

by Ramya M RajagopalanJulie CakiciCinnamon S Blossa Herbert Wertheim School of Public Health and Human Longevity Science UC San Diego La Jolla USAb Center for Empathy and Technology T Denny Sanford Institute for Empathy and Compassion UC San Diego La Jolla USAc School of Public Health San Diego State University La Jolla USA

How Do Molecular Systems Engineering Scientists Frame the Ethics of Their Research

Published on 9 Jan 2024

by Renan Gon alves Leonel da SilvaAlessandro BlasimmeEffy VayenaKelly E OrmondHealth Ethics and Policy Lab Department of Health Sciences and Technology ETH Zurich Zurich Switzerland

The Need to Consider Context A Systematic Review of Factors Involved in the Consent Process for Genetic Tests from the Perspective of Patients

Published on 8 Jan 2024

by Fr d ric CoulombeAnne Marie Labergea Medical Genetics McGill University Health Center and McGill University Montreal Canadab Medical Genetics Department of Pediatrics CHU Sainte Justine and Universit de Montr al Montreal Canadac Bioethics Program School of Public Health Universit de Montr al Montreal Canada

Structural Equation Modeling Analysis on Associations of Moral Distress and Dimensions of Organizational Culture in Healthcare A Cross Sectional Study of Healthcare Professionals

Published on 2 Jan 2024

by Tessy A ThomasShelley KumarF Daniel DavisPeter BoedekerSatid Thammasitboona Department of Pediatrics Division of Pediatric Critical Care Medicine Janet Weis Children s Hospital Geisinger Health System Danville PA USAb Center for Bioethics amp Decision Sciences Geisinger Health System Danville PA USAc Center for Research Innovation and Scholarship in Health Professions Education Department of Pediatrics Baylor College of Medicine Texas Children s Hospital Houston TX USAd Department of Education Innovation and Technology Baylor College of Medicine Houston TX USAe Department of Pediatrics Section of Critical Care Medicine Baylor College of Medicine Texas Children s Hospital Houston TX USA

Morally Problematic Situations Encountered by Adults Living With Rare Diseases

Published on 14 Dec 2023

by Ariane Quintal lissa HotteAnnie Danielle GrenierCaroline H bertIsabelle CarreauYves BerthiaumeEric Racinea Pragmatic Health Ethics Research Unit Institut de recherches cliniques de Montr al Montr al Canadab D partement de m decine sociale et pr ventive Universit de Montr al Montr al Canadac Ethics and Rare Diseases Working Group Institut de recherches cliniques de Montr al Montr al Canadad D partement de m decine Universit de Montr al Montr al Canadae Department of Medicine Division of Experimental Medicine Department of Neurology and Neurosurgery McGill University Montr al Canada

Interrogating the Value of Return of Results for Diverse Populations Perspectives from Precision Medicine Researchers

Published on 14 Nov 2023

by Caitlin E McMahonNicole FotiMelanie JeskeWilliam R BrittonStephanie M FullertonJanet K ShimSandra Soo Jin Leea Division of Ethics Department of Medical Humanities and Ethics Columbia University New York New York USAb Department of Social and Behavioral Sciences University of California San Francisco San Francisco California USAc Institute on the Formation of Knowledge University of Chicago Chicago Illinois USAd Vagelos College of Physicians amp Surgeons Columbia University New York New York USAe Department of Bioethics amp Humanities University of Washington School of Medicine Seattle Washington USA

Clinician Perspectives on Opioid Treatment Agreements A Qualitative Analysis of Focus Groups

Published on 14 Nov 2023

by Nathan RichardsMartin FriedLarisa SvirskyNicole ThomasPatricia J ZettlerDana Howarda English Ohio State University College of Arts and Sciences Columbus Ohio USAb Division of General Internal Medicine Ohio State University College of Medicine Columbus Ohio USAc Centre for Ethics University of Toronto Toronto Ontario Canadad CATALYST Ohio State University Columbus Ohio USAe OSU Drug Enforcement and Policy Center and the OSU Comprehensive Cancer Center Ohio State University College of Law Columbus Ohio USAf Department of Biomedical Education and Anatomy Center for Bioethics and OSU College of Arts and Sciences Philosophy Ohio State University College of Medicine Columbus Ohio USA

Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses

Published on 3 Nov 2023

by Connie M UlrichSarah J RatcliffeCamille J HochheimerQiuping ZhouLiming HuangThomas GordonKathleen KnaflTherese RichmondMarilyn M SchapiraVictoria MillerJun J MaoMary NaylorChristine Gradya University of Pennsylvania School of Nursing Philadelphia Pennsylvania USAb University of Pennsylvania Perelman School of Medicine Philadelphia Pennsylvania USAc University of Virginia Charlottesville Virginia USAd George Washington University Washington District of Columbia USAe University of Massachusetts Lowell Lowell Massachusetts USAf University of North Carolina at Chapel Hill Chapel Hill North Carolina USAg Children s Hospital of Philadelphia Philadelphia Pennsylvania USAh Memorial Sloan Kettering Cancer Center New York New York USAi National Institutes of Health Clinical Center Department of Bioethics Bethesda Maryland USA

Should HIV Vaccines Be Made Available at No or Subsidized Cost A Qualitative Inquiry of HIV Vaccine Trial Stakeholders in Tanzania

Published on 27 Oct 2023

by Godwin PancrasMangi EzekielErasto MbugiJon F Merza Department of Bioethics and Health Professionalism School of Public Health and Social Sciences Muhimbili University of Health and Allied Sciences Dar es Salaam Tanzaniab Department of Behavioral Sciences School of Public Health and Social Sciences Muhimbili University of Health and Allied Sciences Dar es Salaam Tanzaniac Department of Biochemistry School of Medicine Muhimbili University of Health and Allied Sciences Dar es Salaam Tanzaniad Department of Medical Ethics amp Health Policy Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA

Multi Level Ethical Considerations of Artificial Intelligence Health Monitoring for People Living with Parkinson s Disease

Published on 27 Oct 2023

by Anita HoItai BavliRavneet MahalMartin J McKeowna Centre for Applied Ethics School of Population and Public Health University of British Columbia Vancouver Canadab Pacific Parkinson s Research Centre University of British Columbia Vancouver Canada

Toward Consent in Molecular HIV Surveillance Perspectives of Critical Stakeholders

Published on 28 Sep 2023

by Stephen MolldremAnthony K J SmithVishnu Subrahmanyama Institute for Bioethics and Health Humanities The University of Texas Medical Branch Galveston TX USAb Centre for Social Research in Health UNSW Sydney Sydney Australia

Frequency of Perceived Conflict between Families and Clinicians at Time of Clinical Ethics Consultation in Hospitalized Children

Published on 27 Sep 2023

by Aleksandra E OlszewskiChuan ZhouJiana UgaleJessica RamosArika PatneaudeDouglas J Opela Division of Critical Care Medicine Department of Pediatrics Lurie Children s Hospital and Northwestern University Chicago Illinois USAb Division of General Pediatrics Department of Pediatrics University of Washington School of Medicine Seattle Washington USAc Center for Child Health Behavior and Development Seattle Children s Research Institute Seattle Washington USAd Treuman Katz Center for Pediatric Bioethics Seattle Children s Research Institute Seattle Washington USAe Center for Diversity and Health Equity Seattle Children s Hospital Seattle Washington USAf Division of Bioethics and Palliative Care Department of Pediatrics University of Washington School of Medicine Seattle Washington USAg School of Social Work University of Washington Seattle Washington USA

Expert Views on Medical Involvement in the Swiss Assisted Dying Practice We Want to Have Our Cake and Eat It Too

Published on 24 Jul 2023

by Christina Nyquist

Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository

Published on 24 Jul 2023

by Courtney Berrios

Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care

Published on 7 Jul 2023

by Marion Danis

Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors A Qualitative Study

Published on 7 Jul 2023

by Nana Arai

I Have Fought for so Many Things Disadvantaged families Efforts to Obtain Community Based Services for Their Child after Genomic Sequencing

Published on 10 May 2023

by Sara L Ackerman

Community Engagement in Precision Medicine Research Organizational Practices and Their Impacts for Equity

Published on 1 May 2023

by Janet K Shim

How Interactive Visualizations Compare to Ethical Frameworks as Stand Alone Ethics Learning Tools for Health Researchers and Professionals

Published on 19 Apr 2023

by Joanna Sleigh

Coding the Dead Cardiopulmonary Resuscitation for Organ Preservation

Published on 28 Feb 2023

by Colin Eversmann

A Cross Sectional Survey of Recruitment Practices Supports and Perceived Roles for Unaffiliated and Non scientist Members of IRBs

Published on 23 Feb 2023

by Stuart G Nicholls

It was like you were being literally punished for getting sick formerly incarcerated people s perspectives on liberty restrictions during COVID 19

Published on 22 Feb 2023

by Minna Song

Ensuring the Scientific Value and Feasibility of Clinical Trials A Qualitative Interview Study

Published on 4 Jan 2023

by Walker Morrell

Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss Clinicians Views and Experiences

Published on 3 Jan 2023

by Lauren Notini

Testing Design Bioethics Methods Comparing a Digital Game with a Vignette Survey for Neuroethics Research with Young People

Published on 22 Aug 2022

by David M Lyreskog

Ethical Challenges Experienced by Healthcare Workers Delivering Clinical Care during Health Emergencies and Disasters A Rapid Review of Qualitative Studies and Thematic Synthesis

Published on 25 Apr 2022

by Mariana Dittborn

Advancing a Data Justice Framework for Public Health Surveillance

Published on 20 Apr 2022

by Mara Buchbinder

Quantifying Utilitarian Outcomes to Inform Triage Ethics Simulated Performance of a Ventilator Triage Protocol under Sars CoV 2 Pandemic Surge Conditions

Published on 18 Apr 2022

by Elizabeth Chuang

Ethical Issues in Intraoperative Neuroscience Research Assessing Subjects Recall of Informed Consent and Motivations for Participation

Published on 6 Jul 2021

by Anna Wexler

Employer Sponsored Egg Freezing Carrot or Stick

Published on 3 Jul 2021

by Molly Johnston

Governing Gene Drive Technologies A Qualitative Interview Study

Published on 3 Jul 2021

by N de Graeff

Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics Participants Views from an HIV TB Genomics Research Project in Botswana

Published on 1 Jul 2021

by Dimpho Ralefala

Deliberations with American Indian and Alaska Native People about the Ethics of Genomics An Adapted Model of Deliberation Used with Three Tribal Communities in the United States

Published on 14 Jun 2021

by Erika Blacksher

Perceptions of Medical Providers on Morality and Decision Making Capacity in Withholding and Withdrawing Life Sustaining Treatment and Suicide

Published on 15 Mar 2021

by Thomas D Harter

Noninvasive Prenatal Testing Views of Canadian Pregnant Women and Their Partners Regarding Pressure and Societal Concerns

Published on 23 Oct 2020

by Vardit Ravitsky

Bioethics as Object of Study Dilemmas of Immanence in Research Ethics Review

Published on 14 Oct 2020

by Carey DeMichelis

The Meaning of Informed Consent Genome Editing Clinical Trials for Sickle Cell Disease

Published on 12 Oct 2020

by Stacy Desine

Old Challenges or New Issues Genetic Health Professionals Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing

Published on 5 Oct 2020

by Danya F Vears

Ethical Legal and Social Issues ELSI of Responsible Data Sharing Involving Children in Genomics A Systematic Literature Review of Reasons

Published on 25 Sep 2020

by Vasiliki Rahimzadeh

Differences in Conceptual Understanding of the Actionability of Incidental Findings and the Resultant Difference in Ethical Responsibility An Empirical Study in Japan

Published on 2 Jul 2020

by Tomohide Ibuki

I Want to Do It But I Want to Make Sure That I Do It Right Views of Patients with Parkinson s Disease Regarding Early Stem Cell Clinical Trial Participation

Published on 9 Jun 2020

by Inmaculada de Melo Mart n

First Do No Harm Ethical Concerns of Health Researchers That Discourage the Sharing of Results With Research Participants

Published on 12 Mar 2020

by Rachel S Purvis

Incorporating Ethically Relevant Empirical Data From Systematic Review of Reasons A Case Study of Sudden Unexpected Death in Epilepsy

Published on 11 Mar 2020

by Robert Torrance

Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon Tanzania and Ghana

Published on 5 Aug 2019

by Daima Bukini

Ethical Leadership and Employees Perceptions About Raising Ethical Concerns to Managers in the Veterans Health Administration

Published on 17 Jul 2019

by Mary Beth Foglia

What Is the Minimal Competency for a Clinical Ethics Consult Simulation Setting a Standard for Use of the Assessing Clinical Ethics Skills ACES Tool

Published on 11 Jul 2019

by Katherine Wasson

Bedside Rationing Under Resource Constraints A National Survey of Ethiopian Physicians Use of Criteria for Priority Setting

Published on 19 Apr 2019

by Frehiwot Berhane Defaye

Older Teens Understanding and Perceptions of Risks in Studies With Genetic Testing A Pilot Study

Published on 19 Apr 2019

by Richard F Ittenbach

Broadening the Debate About Post trial Access to Medical Interventions A Qualitative Study of Participant Experiences at the End of a Trial Investigating a Medical Device to Support Type 1 Diabetes Self Management

Published on 15 Apr 2019

by J Lawton

Framing the diagnosis and treatment of absolute uterine factor infertility Insights from in depth interviews with uterus transplant trial participants

Published on 11 Mar 2019

by Elliott G Richards

Should Researchers Offer Results to Family Members of Cancer Biobank Participants A Mixed Methods Study of Proband and Family Preferences

Published on 31 Dec 2018

by Deborah R Gordon

Assessing Patient Perspectives on Receiving Bad News A Survey of 1337 Patients With Life Changing Diagnoses

Published on 31 Dec 2018

by Reza D Mirza

Data and tissue research without patient consent A qualitative study of the views of research ethics committees in New Zealand

Published on 8 Nov 2018

by Angela Ballantyne

I want us to be a normal family Toward an understanding of the functions of anonymity among U S oocyte donors and recipients

Published on 6 Nov 2018

by Inmaculada de Melo Mart n

Comparison of philosophical concerns between professionals and the public regarding two psychiatric treatments

Published on 6 Nov 2018

by Laura Yenisa Cabrera

Ethical understandings of proxy decision making for research involving adults lacking capacity A systematic review framework synthesis of empirical research

Published on 15 Oct 2018

by Victoria Shepherd

Cross cultural perspectives on decision making regarding noninvasive prenatal testing A comparative study of Lebanon and Quebec

Published on 30 May 2018

by Hazar Haidar

Moving beyond the theoretical Medical students desire for practical role specific ethics training

Published on 4 May 2018

by Shana D Stites

I didn t have anything to decide I wanted to help my kids An interview based study of consent procedures for sampling human biological material for genetic research in rural Pakistan

Published on 3 May 2018

by Nana Cecilie Halmsted Kongsholm

To report or not to report Exploring healthy volunteers " rationales for disclosing adverse events in Phase I drug trials

Published on 25 Apr 2018

by Lisa McManus

How acceptable is paternalism A survey based study of clinician and nonclinician opinions on paternalistic decision making

Published on 9 Apr 2018

by Kunal Bailoor

Patient perspectives on compensation for biospecimen donation

Published on 3 Apr 2018

by Samuel C Allen

An empirical assessment of the short term impacts of a reading of Deborah Zoe Laufer " s drama Informed Consent on attitudes and intentions to participate in genetic research

Published on 7 Mar 2018

by Erin Rothwell

Will they be good enough parents Ethical dilemmas views and decisions among assisted reproductive technology ART providers

Published on 23 Oct 2017

by Robert Klitzman

Counseling parents at risk of delivery of an extremely premature infant Differing strategies

Published on 19 Oct 2017

by Marlyse F Haward

How should we deal with misattributed paternity A survey of lay public attitudes

Published on 29 Sep 2017

by Georgia Lowe

Same behavior different provider American medical students " attitudes toward reporting risky behaviors committed by doctors nurses and classmates

Published on 8 Sep 2017

by Sahil Aggarwal

14 published articles in 2025