260 Published articles
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Potential Strategies for Strengthening Community Engagement in Ethical Oversight of Human Research: Results from an Exploratory, Mixed-Methods Study
Published on 9 Nov 2026
by Emily E. Anderson James M. DuBois Ryan Spellecy Vasiliki Rahimzadeh Luke Gelinas Holly Taylor Stuart Gordon Nicholls a Loyola University Chicago, Stritch School of Medicine, Neiswanger Institute for Bioethics, Maywood, IL, USAb Washington University in Saint Louis, Bioethics Research Center, Saint Louis, MO, USAc Medical College of Wisconsin, Center for Bioethics and Medical Humanities, Milwaukee, WI, USAd Baylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, TX, USAe Advarra, Columbia, MD, USAf National Institutes of Health, Clinical Center, Department of Bioethics, Bethesda, MD, USAg The Ottawa Hospital Research Institute, Ottawa, ON, Canada
“Everyone is Responsible for Their Own Life”: Views on Research Participation Decision-Making Among Adolescents and Guardians Within Uganda’s Rakai Community Cohort Study
Published on 21 Oct 2026
by Nao Haba Philip Kreniske Holly A. Isenberg Fred Nalugoda Mary Ott Tom Lutalo Neema Nakyanjo William Ddaaki Dauda Isabirye Rosette Nakubulwa Robert Ssekubugu Esther Spindler Bai Xi Jasmine Chan Kirsty Sievwright Godfrey Kigozi David Serwadda Nelson Kaulukusi Sewankambo Susie Hoffman John S. Santelli a Center for Global Health, Weill Cornell Medicine, New York, New York, USAb Institute for Implementation Science in Population Health, City University of New York, Graduate School of Public Health and Health Policy, New York, NY, USAc Rakai Health Sciences Program (RHSP), Kalisizo, Ugandad Department of Global Health, Icahn School of Medicine at Mount Sinai, New York, NY, USAe Institute for Mixed Methods Research (IMMR), Manhattan Beach, CA, USAf Health Science Department, Sacred Heart University, Fairfield, CT, USAg School of Public Health, Makerere University, Kampala, Ugandah College of Health Sciences, Makerere University, Kampala, Ugandai HIV Center for Clinical and Behavioral Studies, NYS Psychiatric Institute and Columbia University, New York, USAj Heilbrunn Department of Population and Family Health, Columbia University Mailman School of Public Health, New York, USA
What Does It Mean to Be Cured?: Perspectives from Individuals Living with Sickle Cell Disease
Published on 13 Oct 2026
by Marilyn S. Baffoe-Bonnie a Department of History and Sociology of Science, University of Pennsylvania, Philadelphia, PA, USAb Center for Health Justice and Bioethics, Lewis Katz School of Medicine, Temple University, Philadelphia, PA, USA
Clinician Mistrust in Patients: A Survey of Primary and Urgent Care Clinicians in Colorado
Published on 30 Sep 2026
by Eric G. Campbell Hannah Scotch Christine M. Baugh Matthew DeCamp Lauren A. Taylor Lindsey E. Fish Matthew K. Wynia a Center for Bioethics and Humanities, University of Colorado, Aurora, COb Department of Medicine, Division of General Internal Medicine, University of Colorado Anschutz School of Medicine, Aurora, COc Department of Population Health, New York University Grossman School of Medicine, New York, NYd Department of General Internal Medicine, Denver Health and Hospital Authority, Denver, CO
Does the Law Reflect Patient Preferences? Discordance Between Legal Surrogate Hierarchy and Chosen Surrogate Decision-Makers in Preoperative Patients
Published on 20 Aug 2026
by Riya Kumar Andrew Childress Claire Hoppenot a Baylor College of Medicine, Houston, Texas, USAb Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USAc Division of Gynecologic Oncology, Baylor College of Medicine, Houston, Texas, USA
In Algorithms We Trust? Stakeholder Perspectives on Algorithmic and AI-Based Survival Calculators
Published on 20 Aug 2026
by Meghan E. Hurley Kristin Kostick-Quenet Jared N. Smith Joanna Smolenski Rita Dexter Jennifer Blumenthal-Barby Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA
Organ Procurement Organization Perspectives on Normothermic Regional Perfusion Practices: A Qualitative Interview Study
Published on 19 Aug 2026
by Katya Kaplow Amanda Buster Elisa J. Gordon Anji E. Wall Tessa Flower Carolyn N. Sidoti Macey L. Levan Brendan Parent a Department of Surgery, Grossman School of Medicine, New York University, New York, New York, USAb Department of Surgery, Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee, USAc Division of Abdominal Transplantation, Department of Surgery, Baylor University Medical Center, Dallas, Texas, USAd Department of Population Health, Grossman School of Medicine, New York University, New York, New York, USAe Division of Medical Ethics, Grossman School of Medicine, New York University, New York, New York, USA
Facilitating Decision Making at End of Life: How Physicians’ Experiences Can Inform the Work of Clinical Ethicists
Published on 18 Aug 2026
by Joelle Robertson-Preidler Mikaela Kim Sophia Fantus Janet Malek a McGovern Center for Humanities and Ethics, McGovern Medical School, Houston, TX, USAb Institute for Bioethics & Health Humanities, University of Texas Medical Branch, Galveston, TX, USAc School of Social Work, The University of Texas at Arlington, Arlington, TX, USAd Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA
Capturing Perceived Utility from Qualitative Studies of Genomic Sequencing: Translating a Conceptual Model into a Working Codebook
Published on 22 Jul 2026
by Betty Cohn Tesla Theoryn Olivia Sommerland Priyanka Murali Joon-Ho Yu Kailyn Anderson Kirsty McWalter Britt Johnson Dan Doherty Michael J. Bamshad Katherine E. MacDuffie a Institute for Public Health Genetics, University of Washington, Seattle, Washington, USAb Department of Pediatrics, Division of Genetic Medicine, University of Washington, Seattle, Washington, USAc Department of Pediatrics, Division of Bioethics and Palliative Care, University of Washington, Seattle, Washington, USAd Seattle Children’s Research Institute, Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle, Washington, USAe GeneDx, LLC, Gaithersburg, Maryland, USAf Brotman Baty Institute, Seattle, Washington, USA
Who Receives Ethics Consultations? An Analysis of Racial and Ethnic Characteristics of an Ethics Consult Service in an Urban Academic Medical Center
Published on 6 Jul 2026
by Vivian Kim Adira Hulkower Elizabeth Chuang a Psychiatry, Brigham and Women’s Hospital, Boston, Massachusetts, USAb Montefiore Einstein Center for Bioethics; Epidemiology and Population Health, Albert Einstein College of Medicine, Bronx, New York, USAc Montefiore Einstein Center for Bioethics; Department of Medicine, Division of Critical Care Medicine, Albert Einstein College of Medicine, Bronx, New York, USA
“I Have Someone’s Life in my Hands”: How Cancer Care Partners Experience and Navigate Moral Challenges
Published on 29 Jun 2026
by Clare Whitney Jane Evered Fiona Larsson Irene Pyo Ga Lee a School of Nursing, Stony Brook University, Stony Brook, NY, USAb Department of Family Medicine & Community Health, University of Wisconsin-Madison, Madison, WI, USAc School of Nursing, University of Pennsylvania, Philadelphia, PA, USAd Stony Brook University, Stony Brook, NY, USA
“It’s an Uphill Battle. We Have a Long Way to Go”: Perspectives of Canadian Individuals Living with Genetic Conditions Detectable by Prenatal Cell-Free DNA Screening
Published on 24 Jun 2026
by Mathilde Cassou Vardit Ravitsky Anne-Marie Laberge a School of Public Health, University of Montreal, Montreal, Canadab Institute for Higher Education and Research in Healthcare, Lausanne University Hospital, Lausanne, Switzerlandc The Hastings Center, Garrison, NY, USAd Medical Genetics, Department of Pediatrics, CHU Sainte-Justine & Université de Montréal, Montreal, Canada
Psychological Harms of HIV Vaccine Trial Participation in Tanzania: Could Post-Trial Participants Engagement Help?
Published on 11 Jun 2026
by Judith Shayo Amani Anaeli David Urassa Adamu Addissie Eligius Lyamuya Connie M. Ulrich a Muhimbili University of Health and Allied Sciences, Dar es salaam, Tanzaniab Addis Ababa University, School of Public Health, Addis Ababa, Ethiopiac University of Pennsylvania School of Nursing and Perelman School of Medicine, NewCourtland Center for Transitions and Health, Leonard Davis Institute of Health Economics, Philadelphia, PA, USA
Do Reasons Matter? An Empirical Exploration of the Role of Parents’ Reasons in Treatment Refusal in Pediatric Oncology
Published on 21 Apr 2026
by Amy Caruso Brown Bryanna Moore Lynn Gillam a Center for Bioethics and Humanities and Department of Pediatrics, Division of Pediatric Hematology/Oncology, SUNY Upstate Medical University, Syracuse, New York, USAb Department of Health Humanities and Bioethics, School of Medicine and Dentistry, University of Rochester, Rochester, New York, USAc Children’s Bioethics Centre, Royal Children’s Hospital, Melbourne, Victoria Department of Paediatrics, Melbourne Medical School, University of Melbourne, Melbourne, Victoria, Australia
Canadian Medical Assistance in Dying (MAID) and Access to Resources: An Analysis of Media Reports
Published on 21 Apr 2026
by Anurima Chattopadhyay Yukiko Asada Leslie Anne Campbell Michel Grignon Mira Raju Nathan K. Smith Scott Y. H. Kim a Department of Bioethics, National Institutes of Health, Clinical Center, Bethesda, MD, USAb Department of Community Health and Epidemiology, Dalhousie University, Halifax, Canadac Department of Economics, Department of Health, Aging & Society, Centre for Health Economics, and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
Ethical Dilemmas at Student-Run Clinics: A Narrative Review
Published on 16 Mar 2026
by Nicholas Peoples Alexandra Alvarez Shiwei Wang Emily Wang Ashley Ricciardelli Shangzhi Xiong Dana L. Clark a Department of Emergency Medicine, Massachusetts General Hospital and Brigham and Women’s Hospital, Boston, MA, USAb Baylor College of Medicine, Houston, TX, USAc Duke Kunshan University, Kunshan, Jiangsu Province, Chinad Department of Medicine, Icahn School of Medicine at Mount Sinai, New York City, New York, USAe Department of Neurosurgery, Jacobs School of Medicine and Biomedical Sciences, University at Buffalo, Buffalo, New York, USAf The George Institute for Global Health, Faculty of Medicine and Health, University of New South Wales, Sydney, Australiag Healthcare for the Homeless-Houston, Houston, TX, USA
Ethical Considerations for AI-Enabled Voice Analysis: Features of an Emerging Bioethics Literature
Published on 7 Mar 2026
by Michele D. Anzabi Austin M. Stroud Richard R. Sharp Department of Quantitative Health Sciences, Biomedical Ethics Research Program, Mayo Clinic, Rochester, MN, USA
Differences Between Government, Consortium, and Private Database Stewards Impacting the Genomic Data Market: A Survey of U.S. Academic Genetic Researchers
Published on 6 Mar 2026
by Amanda K. Greene J. Denard Thomas Kaitlyn Jaffe Luyun Chen Kerry A. Ryan Brian J. Zikmund-Fisher J. Scott Roberts Amy L. McGuire Katherine Hendy Kayte Spector-Bagdady a Center for Bioethics & Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor, Michigan, USAb Department of Health Promotion and Policy, University of Massachusetts, Amherst, Massachusetts, USAc Department of Obstetrics & Gynecology, University of Michigan Medical School, Ann Arbor, Michigan, USAd Department of Health Behavior and Health Equity, University of Michigan School of Public Health, Ann Arbor, Michigan, USAe Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, Michigan, USAf Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA
The Impact of Family Social Identity on Ethical Decision-Making in the NICU
Published on 23 Feb 2026
by Carey DeMichelis Elizabeth Lanphier Uchenna Anani a University of the Fraser Valley, British Columbia, Canadab Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; University of Cincinnati College of Medicine, Cincinnati, Ohio, USAc Department of Pediatrics, Monroe Carell Jr. Children’s Hospital at Vanderbilt, Nashville, Tennessee; Vanderbilt University Medical Center, Nashville, Tennessee, USA
Information about Clinical Ethics Consultation Services on US Hospital Websites
Published on 19 Feb 2026
by Melina Peshoff Magdelynne Lowy Marion Danis Benjamin Krohmal Elizabeth Lanphier Jake Earl a University of Cincinnati College of Medicine, Cincinnati, OH, USAb Harvard Law School, Cambridge, Cambridge, MA, USAc National Institutes of Health Clinical Center, Bethesda, MD, USAd Georgetown University School of Medicine, Washington, DC, USAe MedStar Washington Hospital Center, Washington, DC, USAf Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USAg Georgetown University, Washington, DC, USA
Primary Care Physician Perspectives on Artificial Intelligence for Dementia Screening: A Qualitative Study
Published on 17 Feb 2026
by Hannah G. Hanson Jalayne J. Arias Heather M. Wurtz Margaret Manchester Catherine Scipion Alex D. Federman a Division of General Internal Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USAb Department of Health Policy and Behavioral Sciences, School of Public Health, Georgia State University, Atlanta, Georgia, USAc Department of Anthropology, College of Liberal Arts and Sciences, University of Connecticut, Storrs, Connecticut, USAd Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA
Scanning the Horizon of Sociogenomics: an Assessment of the Development and Growth of Polygenic Indices for Social and Behavioral Traits
Published on 30 Oct 2025
by Courtney Canter Karen M. Meagher R. Jean Cadigan Amy M. Koopmann Sara Watson Matthew Kucmanic Seung Woo Ban Thanh Tran Maria Hromcenco Kathleen J. Foley Shawneequa Callier Jeremy J. Lamb Anya E. R. Prince a University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USAb Mayo Clinic, Biomedical Ethics Research, Rochester, Minnesota, USAc University of Iowa College of Law, Iowa City, Iowa, USAd The George Washington University School of Medicine and the Center for Research on Genomics and Global Health, National Human Genome Research Institute, National Institutes of Health, Washington, District of Columbia, USA
Mapping the Landscape of Medical Venture Philanthropy
Published on 28 Oct 2025
by Megan M. Shen Justin T. Clapp Holly Fernandez Lynch Matthew S. McCoy a Department of Pediatrics, Massachusetts General Hospital, Boston, MA, USAb Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USAc Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA, USA
Alzheimer’s Disease Clinical Trial Decision-Making Among Patients with Mild Cognitive Impairment and Their Study Partners
Published on 28 Oct 2025
by Chelsea G. Cox Adam I. Birnbaum Christian R. Salazar Megan Witbracht Steven P. Tam Gaby T. Thai S. Ahmad Sajjadi Daniel L. Gillen Joshua D. Grill a Department of Health Behavior & Health Equity, University of Michigan School of Public Health, Ann Arbor, MI, USAb Department of Statistics, University of California, Irvine, CA, USAc Institute for Memory Impairments & Neurological Disorders, University of California, Irvine, CA, USAd Department of Family Medicine, University of California, Irvine, CA, USAe Department of Neurology, University of California, Irvine, CA, USAf Department of Psychiatry & Human Behavior, University of California, Irvine, CA, USAg Department of Neurobiology & Behavior, University of California, Irvine, CA, USA
Whose Autonomy Matters? Using Relational Autonomy to Analyze Caregiver Roles in Decision-Making for Cancer Clinical Trials
Published on 28 Oct 2025
by Eric C. Blackstone Susan R. Mazanec Barbara J. Daly Jennifer A. Dorth Alberto J. Montero Mark P. Aulisio Patricia T. Brandt Sana Loue a School of Medicine, Case Western Reserve University, Cleveland, Ohio, USAb Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, Ohio, USAc Case Comprehensive Cancer Center, Cleveland, Ohio, USAd University Hospitals Seidman Cancer Center, Cleveland, Ohio, USA
Medical Sanctions and the Response of Pharmaceutical Companies to Russia’s Invasion of Ukraine: A Thematic Analysis
Published on 18 Oct 2025
by Christopher A. Bobier Krisha Darji Daniel J. Hurst a Foundational Sciences, Central Michigan University College of Medicine, Mt. Pleasant, MI, USAb Rowan-Virtua School of Osteopathic Medicine, Stratford, NJ, USAc Department of Medical Education and Scholarship, Rowan-Virtua School of Osteopathic Medicine, Stratford, NJ, USA
Informed Consent Documents from Psychedelic Clinical Trials: A Descriptive Ethical Analysis
Published on 16 Jul 2025
by Katherine Cheung Caleigh Propes Marianna Graziosi Kyle Patch David B. Yaden a Berman Institute of Bioethics & Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USAb Department of Clinical Psychology, Hofstra University, Hempstead, New York, USAc Department of Psychiatry and Behavioral Sciences, Center for Psychedelic and Consciousness Research, Johns Hopkins University School of Medicine, Baltimore, Maryland, USAd Carey Law School, University of Pennsylvania, Philadelphia, Pennsylvania, USA
Patients’ Views on Paying to Participate in Clinical Trials
Published on 3 Jul 2025
by Nyiramugisha Niyibizi Tekiah McClary Margie Dixon April Liao Candace D. Speight Ayannah Lang Neal W. Dickert Rebecca D. Pentz a Georgia Clinical and Translational Science Alliance at Emory University School of Medicine, Atlanta, GA, USAb Department of Hematology/Oncology, Winship Cancer Institute of Emory School of Medicine, Atlanta, GA, USAc Division of Cardiology, Department of Medicine, Emory University School of Medicine, Atlanta, GA, USA
Pediatric Intensivists’ Perspectives on Nudging: A Multi-Institution Assessment of Ethical Permissibility
Published on 1 Jul 2025
by Aliza M. Olive Asdis Finnsdottir Wagner Ashely K. Sherman Jessica S. Wallisch Laura Miller-Smith a Division of Pediatric Critical Care and Case Western Reserve Lerner College of Medicine, The Cleveland Clinic, Cleveland, Ohio, USAb Division of Pediatric Critical Care, Children’s Mercy Hospital and University of Missouri-Kansas City, Kansas City, Missouri, USAc Department of Statistics, Children’s Mercy Hospital, Kansas City, Missouri, USAd Division of Pediatric Intensive Care, Doernbecher Children’s Hospital, Oregon Health Sciences University, Portland, Oregon, USA
Development and Validation of a Stakeholder-Driven, Self-Contained Electronic Informed Consent Platform for Trio-Based Genomic Research Studies
Published on 23 Jun 2025
by Bethany Y. Norton James Liu Sara A. Lewis Helen Magee Tyler N. Kruer Rachael Dinh Somayeh Bakhtiari Sandra H. Nordlie Sheetal Shetty Jennifer Heim Yumi Nishiyama Jorge Arango Darcy Johnson Lee Seabrooke Mitchell Shub Robert Rosenberg Michele Shusterman Stephen Wisniewski Blair Cooper Erin Rothwell Michael C. Fahey M. Wade Shrader Nancy Lennon Joyce Oleszek Wendy Pierce Hannah Fleming Mohan Belthur Jennifer Tinto Garey Noritz Laurie Glader Kelsey Steffen William Walker Deborah Grenard Bhooma Aravamuthan Kristie Bjornson Malin Joseph Paul Gross Michael C. Kruer a Barrow Neurological Institute, Phoenix Children’s, Phoenix, Arizona, USAb Departments of Child Health, Cellular & Molecular Medicine, Neurology and Program in Genetics, University of Arizona College of Medicine – Phoenix, Phoenix, Arizona, USAc Programs in Behavioral Health, Biomedical Informatics, Molecular & Cellular Biology, and Neuroscience, Arizona State University, Tempe, Arizona, USAd Cerebral Palsy Research Network, Greenville, South Carolina, USAe Department of Epidemiology, University of Pittsburgh, Pittsburgh, Pennsylvania, USAf Department of Obstetrics & Gynecology, University of Utah, Salt Lake City, Utah, USAg Department of Paediatrics, Monash University, Melbourne, Victoria, Australiah Department of Orthopedics, AI DuPont Children’s Hospital, Wilmington, Delaware, USAi Department of Physical Medicine & Rehabilitation, Colorado Children’s Hospital, Aurora, Colorado, USAj Division of Complex Care, Department of Pediatrics, Nationwide Children’s, Columbus, Ohio, USAk Department of Neurology, Washington University, St. Louis, Missouri, USAl Department of Pediatrics, Division of Developmental Medicine, Seattle Children’s, Seattle, Washington, USA